I am a Caregiver: Resources

WHAT IS IT: Our lending libraries and resources learning materials are available for people living with dementia, families and friends, and health-care professionals. Library resources may be borrowed for 2 months. Resources are the printed documents from the Alzheimer Society of Canada and available to take as needed.
WHAT WILL I FIND THERE: A wide variety of subjects including (but not limited to): brain health, how to live well with dementia, in-home safety, medications, stress management strategies, printed materials from the Alzheimer Society of Canada
WHAT IS IT: The national level of the Alzheimer Society
WHAT WILL IF FIND THERE? A large website filled with current information
LINK: alzheimer.ca/en
SPECIFIC TOPICS (click the words): I’m caring for a person living with dementia
I have a friend or family member who lives with dementia
What is dementia
Other types of dementia
Dementia numbers in Canada
Research
WHAT WILL I FIND THERE? Websites that help people living with dementia, their families, caregivers and communities to recognize the risk of going missing, be prepared for incidents of going missing, and ensure that people with dementia can live safely in the community.
TOPICS: location technology, safety in the home and community, preparing for emergencies
SPECIFIC TOPICS: Finding Your Way – safety at home and in the community (homepage)
Locating Technology
Identification Form (when someone goes missing)
Medic Alert Safely Home
Project Lifesaver
FOR: Everyone
WHAT WILL I FIND THERE? Websites where information on homecare, adult day programs, retirement homes and long term care can be found. These direct links may require some further “clicks” to find the specific information you are looking for.
TOPICS: How to access these services and costs
LINKS: Home and Community Care Support Services (formally the LHIN)
Haldimand, Norfolk, Brant, Hamilton, Burlington: Click Here
Oakville, Milton, Halton Hills: Click Here
Other areas LHIN: Click HereAdult Day Program list and information:
Haldimand, Norfolk, Brant, Burlington, Hamilton
Oakville, Milton, Halton, Hills: Click HereLong Term Care Homes
Maps with locations:
Hamilton: Click Here
Burlington: Click Here
Brant: Click Here
Haldimand Norfolk: Click Here
Oakville: Click Here
Milton: Click Here
Halton Hills: Click HereWaitlists
Most current version: Click Here

Accommodation cost in LTC:
For Long Term Care: Click Here
Comparing LTC to Retirement Homes: Click Here

Moving:
Caregiver Stress Assessment Checklist: Click Here
Long Term Care home (tour) checklist: Click Here
Preparing for the day of the move into LTC: Click Here
Alzheimer Society of Canada information site with links: Click Here

FOR: Everyone
WHAT WILL I FIND THERE: A variety of Provincial and Federal websites providing legal and financial information and resources
TOPICS: Taxes, Power of Attorney forms, Capacity and Consent
LINKS: Click here (maybe a link to a pdf document with the info below?)

Government Programs and Services: Welcome to the Benefits Finder
Disability Tax Credit information (CRA): T2201
Medical Expenses (CRA): Medical Expenses
Advanced Care Planning: video to explain what it is
Resources and Tools (Advanced Care Planning in Canada)
Planning for your future (Alzheimer Society of Canada)
Power of Attorney- General Overview: POA – General Overview document
POA- forms (will require Adobe Acrobat)
Advocacy Centre for the Elderly: Legal clinic for low income senior citizens
Office of the Public Guardian and Trustee: General Information
Capacity and Competency: Ministry of the Attorney General

FOR: Persons supporting or living with a diagnosis of dementia and are under the age of 65
WHAT WILL I FIND THERE: Information unique to this population
TOPICS: Overview, what to do if you have young onset dementia, information and resources
LINKS : Alzheimer Society of Canada- Young Onset dementia
YOD resource booklet we created 
Local Alzheimer Society support group  
FOR: People under the age of 18 who have a person living with dementia in their lives
WHAT WILL I FIND THERE: Age appropriate information for this population
TOPICS: Emotions, education and further resources
LINKS : Emotions, education and further resources
Helping children understand dementia (Alzheimer Society of Canada)
Just for Kids information sheet (Alzheimer Society of Canada)
Activity Book about Frontotemporal disease (Baycrest)
Resource List for Teens (Alzheimer Society of Canada)
Helping Teens understand Alzheimer’s disease (Alzheimer Society of Canada)

POWERHOUSE

FOR: Powerhouse is evidence informed program developed to teach young caregivers life and personal development skills, provide opportunity to connect with other caregiving kids, bring caregiving families together, and reinforce self-care.
WHAT WILL I FIND THERE: Powerhouse programs are delivered throughout the Haldimand, Norfolk and Niagara Regions and are geared towards ages 5 to 25 and have supported hundreds of young caregivers over the years. All of our Powerhouse services aim to build the resilience of young caregivers and their families.

Examples of Powerhouse Programs:

  • summer camp
  • weekly respite
  • life skills
  • counselling (group and individual)
  • teen programs
  • young adult programs

Powerhouse – Young Caregivers Association

Caregiving Essentials

A free 8-week online course for people who are the family or informal caregivers of older adult(s). This online program will enable you to learn at your own pace – when it is most convenient for you.

Note: This is not a dementia-specific education curriculum.

To learn more about Caregiving Essentials, visit the McMaster Institute for Research on Aging website.

Caregiving Strategies

An online collection of educational resources that have been developed and/or curated for family and friend care partners who provide care and support to seniors experiencing frailty.

Note: This is not a dementia-specific education curriculum.

To learn more about Caregiving Strategies, visit the Provincial Geriatric Leadership Ontario website.

Resources For Care Partners

Online resources developed or curated by the Reitman Centre Enhancing Care Program Team to provide care partners with current and relevant information, education and instruction on managing day-to-day care of persons living with dementia.

Link: www.dementiacarers.ca/resources

Alzheimer Society of Canada: Communicating with people living with dementia

Understand how dementia affects communication and learn some useful tips and strategies for your conversations with people living with dementia as they progress through the stages of the disease. 

Please click here to learn more.