I am a Caregiver: Resources

WHAT IS IT: Our lending libraries and resources learning materials are available for people living with dementia, families and friends, and health-care professionals. Library resources may be borrowed for 2 months. Resources are the printed documents from the Alzheimer Society of Canada and available to take as needed.
WHAT WILL I FIND THERE: A wide variety of subjects including (but not limited to): brain health, how to live well with dementia, in-home safety, medications, stress management strategies, printed materials from the Alzheimer Society of Canada
WHAT IS IT: The national level of the Alzheimer Society
WHAT WILL IF FIND THERE? A large website filled with current information
LINK: alzheimer.ca/en
SPECIFIC TOPICS (click the words): I’m caring for a person living with dementia
I have a friend or family member who lives with dementia
What is dementia
Other types of dementia
Dementia numbers in Canada
WHAT WILL I FIND THERE? Websites that help people living with dementia, their families, caregivers and communities to recognize the risk of going missing, be prepared for incidents of going missing, and ensure that people with dementia can live safely in the community.
TOPICS: location technology, safety in the home and community, preparing for emergencies
SPECIFIC TOPICS: Finding Your Way – safety at home and in the community (homepage)
Locating Technology
Identification Form (when someone goes missing)
Project Lifesaver (Norfolk County)
FOR: Everyone
WHAT WILL I FIND THERE? Websites where information on homecare, adult day programs, retirement homes and long term care can be found. These direct links may require some further “clicks” to find the specific information you are looking for.
TOPICS: How to access these services and costs
LINKS: Home and Community Care Support Services (formally the LHIN) – Click here

Adult Day Program list and information:

Haldimand, Norfolk, Brant, Burlington, Hamilton
Oakville, Milton, Halton Hills 

Long Term Care Services

General Information: Click Here
Guide to Placement in Long Term Care Homes: Click Here
Long Term Care Fee Structure: Click Here
Long Term Care vs Retirement Homes: Click Here

Moving to Long Term Care:

Caregiver Stress Assessment Checklist: Click Here
Long Term Care home (tour) checklist: Click Here
Preparing for the day of the move into LTC: Click Here
Alzheimer Society of Canada: Click Here
FOR: Everyone
WHAT WILL I FIND THERE: A variety of Provincial and Federal websites providing legal and financial information and resources
TOPICS: Taxes, Power of Attorney forms, Capacity and Consent
LINKS: Government Programs and Services:
Welcome to the Benefits Finder
Disability Tax Credit information (CRA): T2201
Medical Expenses (CRA): Medical ExpensesAdvanced Care Planning: video to explain what it is
Resources and Tools(Advanced Care Planning in Canada)
Planning for your futurePower of Attorney – General OverviewPower of Attorney – PropertyPower of Attorney – Personal CareRequest a FREE Estate Planning ToolkitAdvocacy Centre for the Elderly: Legal clinic for low income senior citizensOffice of the Public Guardian and Trustee: General InformationCapacity and Competency: Ministry of the Attorney General
FOR: Persons supporting or living with a diagnosis of dementia and are under the age of 65
WHAT WILL I FIND THERE: Information unique to this population
TOPICS: Overview, what to do if you have young onset dementia, information and resources
LINKS : Alzheimer Society of Canada- Young Onset dementia
YOD Resource Interactive Booklet
Local Alzheimer Society support group  
FOR: People under the age of 18 who have a person living with dementia in their lives
WHAT WILL I FIND THERE: Age appropriate information for this population
TOPICS: Emotions, education and further resources
LINKS : Emotions, education and further resources
Helping children understand dementia (Alzheimer Society of Canada)
Just for Kids information sheet (Alzheimer Society of Canada)
Activity Book about Frontotemporal disease (Baycrest)
Resource List for Teens (Alzheimer Society of Canada)
Helping Teens understand Alzheimer’s disease (Alzheimer Society of Canada)


FOR: Powerhouse is evidence informed program developed to teach young caregivers life and personal development skills, provide opportunity to connect with other caregiving kids, bring caregiving families together, and reinforce self-care.
WHAT WILL I FIND THERE: Powerhouse programs are delivered throughout the Haldimand, Norfolk and Niagara Regions and are geared towards ages 5 to 25 and have supported hundreds of young caregivers over the years. All of our Powerhouse services aim to build the resilience of young caregivers and their families.

Examples of Powerhouse Programs:

  • summer camp
  • weekly respite
  • life skills
  • counselling (group and individual)
  • teen programs
  • young adult programs

Powerhouse – Young Caregivers Association

Caregiving Essentials

A free 8-week online course for people who are the family or informal caregivers of older adult(s). This online program will enable you to learn at your own pace – when it is most convenient for you.

Note: This is not a dementia-specific education curriculum.

To learn more about Caregiving Essentials, visit the McMaster Institute for Research on Aging website.

Caregiving Strategies

An online collection of educational resources that have been developed and/or curated for family and friend care partners who provide care and support to seniors experiencing frailty.

Note: This is not a dementia-specific education curriculum.

To learn more about Caregiving Strategies, visit the Provincial Geriatric Leadership Ontario website.

Resources For Care Partners

Online resources developed or curated by the Reitman Centre Enhancing Care Program Team to provide care partners with current and relevant information, education and instruction on managing day-to-day care of persons living with dementia.

Link: www.dementiacarers.ca/resources

Alzheimer Society of Canada: Communicating with people living with dementia

Understand how dementia affects communication and learn some useful tips and strategies for your conversations with people living with dementia as they progress through the stages of the disease.

Please click here to learn more.

Teepa Snow’s workshops help equip both formal and informal caregivers with related awareness, knowledge and some skill development in order to respond to a person living with dementia’s change in cognition and abilities in a way that is not hurtful or offensive. It helps those caring for people living with dementia to recognize that the individual is doing the best they can and that if something isn’t working, it’s the responsibility of the Care Partner to change their approach and behaviours toward the person with dementia. It will help us all understand that, with practice, common reactions to the person with dementia can become thoughtful responses that can improve quality of life for everyone involved.


For more information, email help@alzda.ca or contact your local office.

Dementia Dialogue provides people with lived experience a way to share their stories with each other and the broader community. Listeners who have dementia, care partners, and others gain insight and strengthen their adaptive skills. Episodes also help the broader community understand what it means to live with dementia and how they can support people.

There are interviews with researchers, authors, advocates, health professionals, and others who are contributing to improving the lives of people with dementia. The guests are experts in their own lived experience or in a select field relevant to the dementia experience.

The podcast is a community-based initiative. A volunteer Editorial Board contributes by identifying topics for episodes, and potential guests and several members also serve as guest hosts. They help to touch upon the many ways in which dementia is experienced and the diverse ways people respond and adapt.


Ontario Caregiver Organization: One Point of Contact for Caregivers

The Ontario Caregiver Organization (OCO) exists to support caregivers by being their one point of access to information, so they have what they need to be successful in their role. Working collaboratively with caregivers, healthcare providers and other organizations, OCO draws on the variety of work that is currently being done to ease caregiver burnout and improve the caregiving experience. Our programs and services are available, free of charge, to caregivers across the province.

24/7 Ontario Caregiver Helpline & Live Chat

SCALE Program (Supporting Caregiver Awareness, Learning and Empowerment)

Peer Support Program

Online Support Groups

Online Learning

OCO Webinar Series

Young Caregivers Website


Take the time to care for yourself. For more information, please visit www.ontariocaregiver.ca